People Against Childhood Epilepsy, Inc. is a 501(c)3 not for profit corporation formed in 1996 to battle this devastating and far-reaching disease. It was founded by a group of parents in response to their experiences in caring for the medical, physical, social, educational, developmental and emotional needs of their children who suffer from epilepsy and severe seizure disorders. Our fundraising efforts support advances in medical research of epilepsy, as well as provide information and support to many families with similar needs. PACE has nominal overhead and administrative costs. Currently we spend 66% on research, 20% on support, and approximately 14% on administrative costs and overhead.

PACE was formed in 1996 by the parents of Jake Beck, Morgan Fahey and Sophie Beglinger. All three children were diagnosed with seizure disorders at a very young age. While their histories were each very different, their journeys toward a better life are similar. Their journeys have taken them on roads from traditional to alternative medicine, neurology and epileptology, to naturolpathic and homeopathic remedies, from faith healers and Chinese medicine, to surgery and aromatherapy. While leaving no stone unturned, these very special families found each other along the way and formed PACE. It is their hope that PACE will raise funds to push toward the cure of epilepsy and to provide information and support to families along the way.

Since its inception PACE has raised over 4 million dollars, over 2 million of which has been awarded to 56 researchers nationally. We now, after thirteen years, have begun to see the benefit of funding pilot study research. We are very excited, but must press on to find the cure.

PACE also finances an information highway. We currently provide telephonic networking, email systems and seminars to support, educate, and share information with families and caregivers of children who suffer from epilepsy.

Register for Epilepsytalk, and share your experiences with other parents and caregivers of children with epilepsy.

Board of Directors and Officers

Susan Fahey
Chairman

Lauren Beck
President

Steven Beck
Vice President

C. Scott Fahey
Treasurer

Carla Barone
In-House Counsel

PACE Founders

Elizabeth Aquino

Lauren Beck

Steven Beck

Scott Fahey

Susan Fahey

Scientific Review Board
Douglas Cohen, M.D.,
Chairman

Peter B. Crino, M.D., Ph.D.,

Lawrence Hirsch, M.D.,

Barbara Landreth, M.D.,

Douglas Nordli, M.D.,

J. Kirk Roberts, M.D.

Helen Scharfman, Ph.D.
Advisory Board
Elizabeth Aquino
Lisa Bazemore
Janet DeFrino
Caroleigh Evarts
Donald Martocchio
Warren Rosen

Executive Director
Katherine Hinchliffe