Parents Against Childhood Epilepsy, Inc.

A Research and Education Fund

History and Mission Statement

What is PACE?

Parents Against Childhood Epilepsy, Inc. is a 501(c)3 not for profit corporation formed in 1996 to battle this devastating and far-reaching disease. It was founded by a group of parents in response to their experiences in caring for the medical, physical, social, educational, developmental and emotional needs of their children who suffer from epilepsy and severe seizure disorders. Our fundraising efforts support advances in medical research of epilepsy, as well as provide information and support to many families with similar needs. PACE has nominal overhead and administrative costs. Currently we spend 66% on research, 20% on support, and approximately 14% on administrative costs and overhead.

Since its inception PACE has raised over 3 million dollars, over one million of which has been awarded to 50 researchers nationally. We now, after ten years, have begun to see the benefit of funding pilot study research. We are very excited, but must press on to find the cure.

PACE also finances an information highway. We currently provide telephonic networking, email systems and seminars to support, educate, and share information with families and caregivers of children who suffer from epilepsy.

Sign up for Epilepsytalk, and share your experiences with other parents and caregivers of children with epilepsy.